Another JoeyBug Medical Alert

[Plainsong]

Another ward could take her, but try explaining to the orthopedic what brittle asthma even is. And charts? We don't read no stinkin' charts! As for her primary doctor, she'd be the same person if Joey was going public or private. There's only a handful of brittle asthma specialists, so at that level it stops mattering. It's the same here with specialists. I just say that so that some don't derail it into a private versus public thing, because it's the same doctor in her case. She hasn't spoken much about the hospital, just to say that she gets on with the staff on her ward and they're the types who are on the case. Even made a house call!

Hey Joey, I see you lurking down there in the thread lurkers box! Get well soon love.



Whilst our NHS is a fantastic thing, it's currently a bit poorly. To the extent that patients will probably soon be sharing beds. My father in law had a stroke 12 months ago and received the best care available anywhere, albeit in a shabby little dump of a hospital to begin with. It has its problems, but our doctors and nurses are the equal of any in the world. And it's free.

 

[The Big Kahuna]

Yeah, I was just making a general comment about the NHS system on which Joey is depending, and there was no criticism of other systems intended.

 

[Plainsong]

Not sure what the tests will exactly pinpoint at this point, but while it doesn't seem to be resp failure, it's not exactly good either. And she's even gonna miss the 2012 opening ceremonies. Still though, the doctors and nurses are on the case and hopefully this isn't just a natural decline that nothing can be done about just yet. The hospital has wifi but they haven't let her have it. I get the odd text message though, and everyone here pulling for her does mean a lot.

 

[vanflynn]

Thanks for the update. Good to hear it isn't resp failure. Will kick up the healing thoughts/prayers for her and send some good Uke vibes her way.

 

[mm stan]

Aloha,
thank you for the updates on Joey, Kim....Hey Joey sending your some of the coolest hawaiian get well vibes...and just said a prayer for you...Get well girl....take care and Gods Blessings..

 

[bodhran]

Sending you very best wishes and positive thoughts for a speedy recovery Joey. You continue to be in our thoughts and prayers.

 

[Freeda]

Hope you're having a good day, darlin'.

 

[Plainsong]

Well the good news is that she's not in resp failure, and it doesn't seem to be that she needs a machine to breathe for her at night just yet (probably will need a BIPAP eventually, but not yet!), but the bad news is that this decline is real, and unexpected. They couldn't have a closer look at her lungs since they couldn't get the line in to shoot th dye, so she's back at home, being made more comfortable before they give it another go as an outpatient this coming week. She's on total bed rest, and an endocrinologist is getting involved to rule out other factors.

After all this, it might just be that this is how her lungs are now, that she can't hardly get around or talk without going out of breath. But they're going to test everything first obviously to see if there's something that can be done.

So all-in-all its both good news but frustrating. If it isn't the need for a BIPAP or outright resp failure, then WTF is it? They all agree it's not nothing, but at least Joey can be more comfortable and monitored from home.

 

[barefootgypsy]

Concerning - poor Joey, thanks for the update - please tell her she's in (everyone's) thoughts every day......

 

[The Big Kahuna]

Thanks for the update. Having a father in law who's had to wait for 6 years to get a correct diagnosis of a medical complaint, I can imagine what Joey is going through.

 

[joeybug]

Hi everyone

I'm still not up to sitting online for long but just wanted to stop by an let everyone know that I really appreciate the love and good wishes that have come from this thread. We're still not sure what is at the root of my problems, but it's not the big bad resp failure, so hopefully whatever it is, isn't worse than that!

I also appreciate the mods dealing with the "I have a miracle cure" post and PM I got, thank you, people who are sick get desperate and I wouldn't have wanted for someone to be conned by one of those people - it didn't apply to me because I am allergic to coconut so even if I wanted to, I couldn't take it.

Right, my carer is looking at me with that look, time to go back to resting!

Thanks everyone

Joey

 

[ksiegel]

Whatever it takes to get better, Joey! We love you and miss you!

Don't overdo ANYTHING!!!! (and no screaming at the Olympics, either!)

-Kurt​

Hi everyone

I'm still not up to sitting online for long but just wanted to stop by an let everyone know that I really appreciate the love and good wishes that have come from this thread. We're still not sure what is at the root of my problems, but it's not the big bad resp failure, so hopefully whatever it is, isn't worse than that!

I also appreciate the mods dealing with the "I have a miracle cure" post and PM I got, thank you, people who are sick get desperate and I wouldn't have wanted for someone to be conned by one of those people - it didn't apply to me because I am allergic to coconut so even if I wanted to, I couldn't take it.

Right, my carer is looking at me with that look, time to go back to resting!

Thanks everyone

Joey

 

[Plainsong]

I just spotted Joey doing the 200m Butterfly at the Olympics. Back to bed!

 

[molokinirum]

Praying for a quick recovery Joey!! Get well, we all miss you here!!!

 

[Plainsong]

Welp, Joey wanted to let everyone know that she's AFK for a while longer while she battles another infection. This one is more fibro-related, but the fibro has a way of saying "Oh Hai!" when battling the asthma. She's in good spirits, but she has to sleep a lot to stay in those good spirits, and that's not to say that she's in quite a bit of pain. If I remember correctly they're trying for that scan next week. The infection isn't as important as that, but it doesn't feel nice and does keep her away from the keyboard.

And of course she thanks everyone for their support.

 

[TheOnlyUkeThatMatters]

Love and healing energy flowing Joey's way from Oregon.

And a few extra strums on a uke, of course.

 

[barefootgypsy]

I know you'll tell Joey that everyone's thinking of her and rooting for her in their own way - thanks for keeping us informed!

 

[Ukulelerob]

I have been thinking good thoughts for Joey.
I found her books on Amazon and bought them all for my Kindle. I hope she gets decent royalties for these.

My <3 2 Joey
Rob

 

[joeybug]

Hi everyone

Today I am going for a scan to see if I have blood clots or not. I was worried they had booked the scan that didn't work, but just checked and it is the right scan. I get to be radioactive!

Although I now have an infection in my leg, it seems to be responding to antibiotics and hopefully will heal soon!

That's about all I can manage today, so thanks for your comments and prayers and thoughts - and thanks to Ukulelerob who brought my books - I really appreciate all of that!

Joey

 

[mm stan]

Aloha Joey,
Thank you for the update...really worried for you girl....Sending the coolest blessings and prayers from Hawaii... I know that infection makes
you sleep alot and you are tired and weak....Take Care and I'm praying for a speedy recovery.....I am still sick with my infection too....
Your friend, Stan
PS thank you Kim for the updates too.....